The Society for Mucopolysaccharide Diseases (the MPS Society) is a voluntary support group which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases including Fabry Disease, their families, carers and professionals. The MPS Society provides a range of support to parents, professionals and the whole family from diagnosis through treatment and beyond. Their support and advocacy team offers a needs-led service which is tailored to each individual or family. They bring support to families during times of crisis and are there for as long as they need.
This service includes an out of hours service, which operates every day of the year.