MPS Society (based Amersham)

Last updated March 28, 2019.

About Listing

The Society for Mucopolysaccharide Diseases (the MPS Society) is a voluntary support group founded in 1982, which represents from throughout the UK over 1200 children and adults suffering from Mucopolysaccharide and Related Lysosomal Storage Diseases including Fabry Disease, their families, carers and professionals. Membership is open to individuals who are resident in the United Kingdom and who meet the agreed criteria. The charity offers an Advocacy Support Service which provides, among other things, an active listening service to enable individuals, their families and carers to speak about, reflect on and make fully informed decisions in respect of the meeting of their needs. This service includes an out of hours service, which operates every day of the year.

Contact information

Phone 03453899901
Phone 07712653258
Address MPS House, Repton Place, White Lion Road, Amersham, Buckinghamshire, HP7 9LP

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