SOFT UK (Patau’s and Edward’s syndrome)

Last updated August 30, 2023.

About Listing

Information and support for families affected by Trisomy 13, 18 and related conditions. Offers support during prenatal diagnosis, pregnancy, when a pregnancy ends, for families caring for a baby, child or adult with T18 or T13, during bereavement, and for anxiety about future pregnancies.

We are able to provide information on Trisomy 13 (Patau’s syndrome) or Trisomy 18 (Edwards’ syndrome), support for families at all stages of their journey, lived experience of families with a child affected by these syndromes and bereavement support and remembrance for those who have lost a child.

Contact information

Phone 03001027638
Address Website only